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Welcome on the French Website about Moebius Syndrom.


General Assembly 2008 of the French support group for Moebius syndrome in Brittany image

The 11th annual assembly of the French support group took place at Saint Jacques de la Lande in the suburb of Rennes (Ile et Vilaine, France) from June, 1st to June, 4th. Organized by Mr and Mrs Urfer, living in the region for a while, this meeting was the perfect place to debate about future goals of the group (lifting of our website http://www.moebius-france.org , Interactive CD Rom to explain sequence of Moebius to children and teenagers, Production of a press book, organization of an event targeting teenagers and young adults suffering from Moebius sequence). The general assembly itself was on June, 2nd in the morning (Espace Pigeon Blanc, Saint Jacques de la Lande) and Dr La Scala (Hôpital pour enfants, Geneva, Switzerland) concluded it with the minutes of the first scientific congress on Moebius syndrome/speech on smile surgery according to the technique of Dr Zucker (Toronto, Canada). After lunch, attendees were invited to take part to psychological workshop, also introducing Dr Hartmann, a psychologist working in Rennes area. After the dinner offered by the support group on Friday evening,  a lot of people chatting on http://www.moebius-france.com were happy to dance on the floor.


            On Saturday, June 3rd, there were several groups of people walking in the streets of Rennes or in the neighbourhood. On Saturday evening, the last supper was a unique occasion to say goodbye and thank you to several new members (Adeline, Catherine, Céline, Christophe R, Déborah, Elisa, Esteban, Guillaume R, Jean-Luc T, Marie-Christine, Muriel, Nicolas, Noah, and Valérie).

The 05th july 2008
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