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Welcome on the French Website about Moebius Syndrom.


French walk against rare diseases 2006

Last Saturday, December 9th 2006, 10 families from the French Moebius support group participated to the walk against rare diseases in Paris, organised during the week end of Téléthon (a TV program intended to collect money for research against genetic abnormalities among other medical conditions).


The families of the Moebius subgroup had been well recognized within the group of people participating to this walk, with the help of distinctive caps where the words "Syndrome Moebius" were printed.


The walk lasted approximately 5 hours under a somewhat sunny weather. We crossed rue d'Alesia, Boulevard Général Leclercq, Place Denfer Rochereau, Boulevard Raspail, Boulevard Montparnasse, Rue de Sèvres, Avenue de Suffren, and Pont d'Iena. The walk finished near the Eiffel Tower around 7:30 pm local time.


During this walk, an orchestra playing music, clowns and jugglers, focused our attention and we all well tolerated the fatigue coming with time.


I would like to use the opportunity given by the minutes of this walk, to emphasize the fact that this year 2007 will be the 10th anniversary of "Syndrome Moebius France". So happy birthday to our support group and please don't hesitate to come in Pays de la Loire and participate to our General Assembly next May.

The 01st january 2007
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